In 2016, Cancer claimed the lives of over 40000 Australians and continued to be a leading cause of death in Australia. Despite this, the survivorship of Cancer in Australia is relatively high, 68% of people are still alive five years after a cancer diagnosis.
Cancer takes a huge toll on every aspect of the patient's life, and one way of monitoring progress during a patient's treatment are Patient Reported Outcomes (PROs). PROs are a form of self-reporting by the patient that are usually collected via questionnaires and provide insight into the patient's assessment of their situation. This can help clinicians spot problems early, as well as providing important research data that can be used to assess the effects of treatments.
Electronic Patient Reported Outcomes (ePROs) have started to gain traction as an alternative to paper based systems. One of the current challenges facing the industry is integration with already existing systems within the hospital.
In 2013 we were approached with a proof of concept built by Thilo Schuler of an online survey that could send patient data to the MOSAIQ® Radiation Onclolgy Information System (later published in 2014). We extended this proof of concept into a production ready system called PROMPT-Care.
Following the success and adoption of PROMPT-Care, ICCC asked us to update and improve the system, using more modern technologies that had become available in the time since PROMPT.
There have been several changes to how collecting data is handled In the years since the introduction of PROMPT-Care. We needed to decide what tools we most appropriate for building the new version of the system, and there's a lot to consider. Patients and staff has come to learn how to use the old system, and we didn't want to alienate and frustrate them by changing everything. Similarly, as the system was already in use, we needed to prepare a plan for changing over the systems with as little disruption as possible.
We put a lot of effort into making sure that the new tool would not be too disruptive for patients and staff to learn. In order to reduce the burden of transitioning from an IT perspective, we also decided to allow the system to work with the already existing security model that was working with PROMPT-Care.
We investigated software the was currently available for data collection through surveys and started updating our custom applications.
The closer integration with MOSAIQ has resulted in the ability to create the surveys in MOSAIQ and by using point and click making the survey available to patients. The ability to provide multiple languages has been simplified to provide a smooth workflow.
We ensured that the patients had the same user experience. The workflow simplification has been well received by staff.